Lain's Log

Pain and Groucho!

June 8/11

Got a couple of things to talk about. Nothing related. Just a veritable cornucopia of crap!


Hard to believe, but today marks six weeks since my surgery! (as usual, times flies when you're having fun). I've avoided talking about pain - much preferring to take my mind off things by writing weird and wacky stuff on the blog. But since I said from the beginning I'd tell it like it is, guess it's time for an "update", so I'll mention the pain issue today.

Haven't taken any painkillers for weeks, but that doesn't mean the pain is gone. This surgery thing ain't easy. Strangely, the actual breast surgery isn't really the problem. Things are coming along there, slowly but surely - (and don't call me Shirley). But the removal of the Sentinel lymph node, ai yi yi. I've known other women who had over a dozen nodes removed, but here I only had one, and it still hurts like hell! In order to remove it through a small incision under the arm, the docs have to cut and/or generally mess with the nerves.

The back of my right arm from below the shoulder to the elbow is still completely numb, and there's plenty of pain (shooting, aching, jolting), upon movement or exercise all down the arm to wrist. Amazing how removing that one little node could create so much trouble. (but as you know, Trouble is my middle name). Whatever. I'm trying to get used to it. Will get the chance to talk it all over with the medical oncologist (the guy I now call The Nutty Professor), when, at long last, I meet with him June 14th to find out the results to that $5,000 test - the one that will tell me whether I need to undergo chemo. Can't wait! (not)

OK - so that's done! Now, I'm going to talk about what I REALLY want to talk about. Groucho Marx!


Since mentioning Groucho in the Woody Allen-"What-makes-life-worth-living" entry the other day, I've been thinking about him. I've thought about Groucho - and ALL the Marx brothers for as long as I can remember. Always adored them, but Groucho was my fave. Why? Well, just LOOK at the guy! He's fantastic!


As a giant fan of physical comedy, The Marx Brothers always have me laughing from their first moment on screen till the last frame. Groucho had a flair for everything!

Besides his stunningly quick wit, total irreverence, lack of inhibition, crazy ability to dance ANYWHERE, not giving a damn what anybody thinks, those amazing eyebrows, and an apparent healthy, vibrant libido, - I KNOW my favourite thing about Groucho was his total, unabashed love for and appreciation of ALL women! The man could flirt up a storm, and in the process, make any woman feel alive!


Even stuffy Margaret Dumont fell victim to his charms! I love it in Duck Soup (1933), when Rufus T. Firefly (Groucho) tries to seduce her (in the middle of a comedy scene), stating to her outright - "Can't you see what I'm trying to tell you? I LOVE you!" (and she looks so shocked).

Here's the scene. I mean come ON! This is hilarious!



Harpo loved women too, but he usually just chased them all over the place. I much prefer Groucho's brain power, articulate way with words and "subtle" approach, (ha ha). He knows how to turn it on full blast and mess with your mind! (sure wish I could have MET him!)


I mentioned once before that my high school friend, Jeffrey Morgan, ran for student council president (1973), on a Groucho Marx platform and won! (I KNEW there was a reason I liked Jeffrey!) Anyone who loves Groucho is in with me!

Jeffrey once told me that his rock hero, Alice Cooper (also a Groucho fan), actually got the chance to meet and hang out with him once! There's even a picture to PROVE it!

The mind boggles at the concept of this combo!


I will leave you with one of my favourite Groucho scenes from Monkey Business (1931). From 1:35 to the end of the scene, just love it. The captivated lady in question is Thelma Todd ("The Blonde Venus") I especially love the tango - right up onto the bed! Oh, for a man who would actually DO this!


Oh, Groucho, you will live on forever!


Now I think I have to go and watch a Marx Brothers movie. See ya later!

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Pain - and tuned to a lower frequency

May 9/11

I've been trying hard to avoid concentrating on the subject of pain for a day or two, because I'm quite sure anyone who checks this blog is sick to death of hearing about it. Not to harp on it, - but what the hell...pain is a BIG issue for me, and sadly, cancer treatment involves pain, - so I will!

I don't enjoy scaring women who may be about to undergo these same procedures, and please realize, I am ONLY reporting my OWN personal experience! Many other women have had these procedures and gotten through them, apparently, relatively pain-free. I salute them, and am HAPPY for them. - (but am not ONE of them!)

My own GP, (as I've written before), has been my doctor for 40 years. She's kind, caring and has watched over the health of my family
all of these years. That's why I've stayed with her - because she is sympathetic and knows EVERYTHING about our history. Yet, when I came to see her a few weeks before my breast cancer surgery, expressing intense fear about surgical pain in regards to the upcoming lumpectomy and removal of Sentinel nodes for biopsy/testing, she looked at me quizzically and asked, calmly, (and, in MY mind, - insanely), "What would the pain be COMING from?? - Are you friggin' kidding me Doc?" This MUST be a candid camera hoax!

She ended up repeating the exact same question a SECOND time, later in our conversation! Not having ever undergone surgery in my entire life, I said, (shrugging my shoulders and guessing), - "Um, from the INCISION???"

She responded, "It's just like having a cyst removed." - (well, how the HELL would I know what it's like to have a cyst removed??)

I finally realized this chat was futile and gave up on trying to get her to write me a prescription for Percocet, (or something stronger than usual,) in advance of the surgery.

Later, on surgery morning, I was lying on a gurney, awaiting the surgeon, Dr. McCready. He introduced me to the anaesthetist, to go over things before I was put under. Again, I brought up the subject of pain relief and was told I would get Tylenol 3 when I leave the hospital, - until I requested Percocet. He agreed to allow this, but not before stating emphatically that this surgery is not generally associated with much pain! (have you HAD this surgery Doc??)

Having lived with the effects of the surgery for 12 days now, I can authoritatively say, it DOES involve pain. (at least, for me). Now, the incision on the breast, (for the lumpectomy), appears to be excellent. Healing extremely well. No sharp, shooting jolts - only HUGE bruising, insane swelling and lots of throbbing.

The breast itself looks better than I ever thought possible. I'm so happy. I still have my breast! The bruising is massive, the swelling, still Raquel Welch huge - (which isn't bad folks!), but I know it won't last forever. (and with THIS kind of pain, no thanks on size alteration in the future - won't be asking for implants in my lifetime!)

But the ongoing worst problem is dealing with the pain under the arm, where the Sentinel lymph nodes were removed. Still extremely intense pain, - even though I'd read in the Dr. Susan Love Breast Book - and online, that women who only have Sentinel nodes removed - (and NOT axillary lymph node surgery), don't often encounter the kind of pain and swelling I've undergone.

The Breast Book talks about lymph node operations and surgery, saying there are, "18 sensations after breast cancer surgery." They include these descriptive words:

Tender, sore, pull, ache, painful, twinge, tight, stiff, prick, throb, shoot, tingle, numb, burn, hard, sharp, nag and penetrate.

Yep. That pretty well sums it up. I have had ALL of the above - especially burning and numbness.

The book continues to say, "Some sensations are still present five years after Sentinel node biopsy. Tenderness remained in about 33 percent of women after five years." Great to hear.

The wild amount of numbness, running all down the back of my right arm, from shoulder to elbow, (coupled with heavy pain in the same area), makes it very difficult to do much of anything - especially driving (in a car with a gear shift!), and most daily chores - (hauling garbage, lugging grocery bags, washing my hair in the shower, and the ever-delightful changing-piles-of-cat litter). Each day since surgery, the numb sensations have increased, reaching an all-time high today.

I have NO idea what to expect on Friday the 13th, when I go back to the surgeon for pathology results. Praying for good news. Sam will be with me in case I faint.

While in No Frills today, I was astonished to find myself wandering the aisles, feeling very weak and spacey, (no drugs - just tired and drained from all the pain). My daughter, Kate, calls this feeling, "Being tuned to a lower frequency"

I kept picking out more and more fruit. It was as though someone was actually willing me to buy more fruit for some unknown reason - even mangos! Seconds later, I felt something really strange come over me, which freaked me out. Have never believed in the concept of getting messages from the other side, but it suddenly felt as though Mum was telling me that everything was going to be OK. I didn't see or hear her in any way, but the full extent of the words I FELT I may have been receiving from her, was only that - Everything is going to be OK. If this IS what you were saying to me Mum, I thank you and will choose to believe that is the truth.

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I'm driving!! (yikes)

May 5/11

Finally decided - time to try and take a drive in my car, after
8 days of staying at home, (only WALKING to Broadview and Danforth a couple of times). It's the longest I've been without wheels, except for our annual one-week visit to Fern Resort each year in August, when Sam does all the driving in a rented van - (in order to cram in the massive amount of luggage required for a "high-maintenance" woman, plus clothing, accessories and extras for the needs of TWO teenage kids!)
Note: You can click on photo to "enlarge!" (hoo haw!)

Finally going for a drive - 8 days after surgery!


Was pretty excited about getting behind the wheel again. For anyone who's interested, I've always had a hard-and-fast pact with myself. Won't drive if I've had even ONE SIP of wine, and also won't drive if I've taken a drug of any nature, even an aspirin. So, after a full day without ANY pain meds, - (despite tons of throbbing), I chose to drive the six blocks to Loblaws and Shoppers and see how it goes. I needed to pick up 12-packs of pop. They were OUT of ALL the pop I needed at the IGA, so Loblaws had to be hit.

I was SO happy to be back in my car. Thought it would be a piece of cake. Wrong. It started OUT that way. Fantastic to have the freedom to drive anywhere. But, pretty soon, I discovered, it was tougher than I had anticipated. My right arm is SO damn sore and numb (from the elbow to the shoulder). Even though I removed the steri-strips under the arm and thought all was well, found out, the pain and numbness is still pretty crazy and intense. While pulling out of the parking lot behind Shoppers, I thought, "Uh-oh, this isn't good." Major pain happening. Drove right home. (Might wait another couple of days before trying THAT again!)

I'm still "intact!"


On the PLUS side, (and I'm being really frank here again - so, don't read, if you don't like the unvarnished truth), - as you may know from past blog entries, I was VERY apprehensive about losing much of my right breast. But, at this point, I've been so happy to see the aesthetic results of my surgeon's breast-conserving therapy. (I specifically wore this chocolate- brown tank top, given to me by my sister-in-law, Carolyn, a few years ago, to prove I'm still "together.") I know things may change when I see Dr. McCready again on Friday May 13th, and get further pathology results, (PLEASE let all be well), but at this moment, I couldn't be more ecstatic about what I've seen after the surgery. I still have a figure. Winning! (Thank you, Charlie Sheen for all your positive - and weird words, - even though, you have NO idea who I am!!)
One gear, one speed - GO!!!!

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A bit better

May 5/11

Howdy.
The pain this morning is finally marginally better than it's been (for the first time since the surgery 8 days ago). I don't mean exactly comfortable, but slightly lessened. I took a Percocet about 4 in the morning, to allow me to get a bit more rest without much pain. Hope to go lie down again for a while now. I seem to get a little more energy later in the day.

Actually going for a walk!


Last night, (after 6 p.m.), I went for an evening walk through Withrow Park, where I saw tons of people - jogging, playing games, kids in the play area, dogs running in the leash-free section, (one was particularly speedy and expert at chasing and catching frisbees!), and people just out, digging the day!

My goal was to get back to IGA (now Foodland) to pick out and pay for the rest of our order of groceries and have them delivered. (second time!) Their delivery service is excellent - very quick and efficient.
Then to the pharmacy to get something (for someone ELSE in the family for once - not for me!),

Then, walked home to meet the delivery guy at our front door. On the way home, ran into an old friend of mine, Ilana, who lives in the neighbourhood. It was nice to see a friendly face and have a chat - like normal people do! (but I haven't done much of for the past week). Also took a picture of a pretty front yard a couple of blocks from home. I like what they've done, using a bird bath as a "flower pot," giving a very colourful look at the front of their house.


Watched Idol on Wednesday night. Cheered for James. Seems to me Haley or Jacob might be in trouble tonight. But I really enjoyed ALL their performances.


Go James!


Talk later!

Thinking about the lovely ladies I met in the Princess Margaret teaching class. Some of them will have had their surgeries by now. Hope all will go well for them.

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Hurt So Bad

May 4/11

Little Anthony once said, - Hurt So Bad. (know what you mean Little A!)



Woke up at 6 a.m. in SUCH pain. Guess everybody is pretty damn sick of hearing me say this, but from the very beginning, my goal here has been to tell it like it is, and this IS. Had to go for the Breakfast of Champions again, two Percocet, half a Gravol and a Colace with juice. Put out the garbage, - earliest ever, since I had nothing ELSE better to do, (like SLEEP!) Going to listen to Dave (NEWSTALK 1010) on the 7 a.m. news, then back to bed and just hope the pills kick in for a while.

I suppose the visit to the Doc yesterday was at least a bit reassuring, but it sure doesn't take away the pain.

Still can't drive (obviously - when I'm on heavy meds!), so the kids continue to be on their own for transportation. They've become outstanding at TTCing it or walking around town.

Had a very nice birthday dinner for Sam last night, which I cooked. Roast beef, gravy, rice and veggies. (all items I picked out and had delivered the other day from Foodland (formerly IGA) on the Danforth. Handy service when you can't carry huge cartloads of groceries home!

I'm trying so hard to lead a normal life, but it's tough when every move hurts. As one amazing guest on Oprah once explained, "You just have to walk THROUGH the pain."

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Check up OK

May 3/11

Went to Dr. McCready's clinic at Princess Margaret this afternoon and was seen by Dr. Ted McAlister, who was part of "my team" during surgery on April 27th. The clinic nurse, Marilyn, was a bit surprised to see the amount of bruising I have, as was the Doc. He thinks I may have had a hematoma in the breast, which caused all the bruising. As for the incision with the non-stop throbbing pain (under the arm, where the nodes were removed for testing), he doesn't think it needs to be aspirated, but believes it just requires more time to heal.

He allowed me to have a repeat of the Percocet, but also told me I could try Advil and/or Extra Strength Tylenol for "breakthrough pain" when I don't want to take the stronger medication. Percocet works REALLY well for the pain, but tends to make you feel nauseous. The trade-off, is being relieved of the constant throbbing and burning for a couple of hours.

So, - back to working my way through this pain, a day at a time.

Did manage to make it out to vote last night, (although from the photo Sam took, I can see how tired I look). Had been out walking all over the neighbourhood for about 90 minutes before heading to cast a ballot.

At the polling station


Our Liberal man, in Toronto-Danforth, - Andrew Lang, lost big-time. Jack Layton beat him by about 20 thousand votes! Quite the election.

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A little too much pain

May 3/11

Happy birthday to my fantastic husband, Sam, today!!! He's been there to support me all the way through this eventful journey and I wish him a great day and a very happy and HEALTHY year ahead! I love you!

Meanwhile, I called the hospital nurse at 2:30 in the morning to leave a message, asking for an appointment. The pain under the arm, where the incision was made to remove the sentinel lymph nodes continues to be very bad. Six days after surgery, I fear this isn't how it should be feeling.

The nurse, Marilyn, called me back before 9 today to tell me my surgeon, Dr. McCready, has a clinic this afternoon at Princess Margaret. It's actually a skin sarcoma clinic, but she says if I come when it starts, at 1:30 p.m., I can get in to see him and have him check this out.
So, off I go to do the "bath routine", (as outlined in the previous crazy, convoluted entry!) Will try to speed it up a little this time (now that most of the bandaging is off, except for the steri-strips).

Kinda fearing an aspiration might need to be done, but we'll see. I'm going to take ONE Percocet to try and relieve some of the pain. Two will make me nauseous and I don't want to feel that way at the hospital. The nurse told me, even if they DO need to aspirate, "The underarm is very numb, so you won't feel it." I disagree, as the only numb part is ABOVE the incision. The part that might need aspirating is in agony! - So, we'll see what happens.

Meanwhile, I've received MORE amazing deliveries. My brother-in-law, Neil and his wife (whom I call my beautiful sister-in-law), Carolyn, sent a fantastic array of delicious fruit from Edible Arrangements and my other sister-in-law, Jan and her husband, Arlen, sent ANOTHER arrangement of yellow and purple flowers. Just stunning! How lucky can one person be, to get all this attention lavished upon them!

Fantastic fruit from Carolyn & Neil


STUNNING arrangements from Jan & Arlen


Will write again later with an "update".

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The surgery experience

April 30/11


Everything has happened so fast, I never actually had a chance to explain what my surgery day was like! I know I posted pics along the way, but didn’t say much about the whole experience. So here’s how it played out.

7:30 a.m. - Arrival time at Princess Margaret. Sat in the waiting room with Sam for half an hour, reading magazines in a big, sunny room with a TV set.

8 a.m. - A nice nurse came to get me and had me change into a gown, robe and weird little green slippers. Had to give my wedding and engagement rings to Sam for safe keeping. He also hung on to a small bag of belongings for me, including my makeup case, (naturally!) – for later.

The charming green slippers


8:30 a.m. - Went for the dreaded “wire jamming”. Very happy to see my “personal jammer” was Dr. Fleming, the same lovely lady who assisted on my ultrasound. She already knew my fear and hatred of pain and promised to use as much Lidocaine as I needed to keep me fairly comfortable during the procedure. I was still frightened, because I’d heard that dense breast tissue (as I apparently have), makes it much more difficult to insert the wire. She and an assistant, gave me a Lidocaine injection. A minute or so later, they began the wire insertion. It started off alright, but then, the pain kicked in. Sharp pain. More Lidocaine. Then, more pushing, prodding, aching. The wire just did NOT want to go in, (as I expected). The poor doctor was saying soothingly, “So sorry sweetie,” as she put more force into it. I could tell it was very tough on HER too. At one point, she said, “Oh GEEEZ!,” since it seemed it was never going to work its way into place. Still more pushing, with all her might, more “sorry sweeties,” and just when I thought I couldn’t take anymore, she said, “That’s it.” Thank God.


They asked me to sit down in the waiting room for a few minutes. There I was, movie star sunglasses on, about to break down in tears, and found myself facing a lovely woman in a gown just like mine. Without thinking, I said, “That was intense.” She looked at me and asked, “Did you just have the wire put in?” I said, “Yes.” She then informed me, she was next! I felt terrible that I’d said anything to frighten her and then said, “I’m sure YOUR procedure will be much easier, since I have dense breasts, so don’t worry.” She responded, “I do too.” Ai yi yi. Can’t win. Then she got called in and I wished her luck.

9:30 a.m. - Off to get the IV inserted. I told the nurse I’d encountered problems with this in the past. Once, I was screaming with pain. (I think I was that nurse’s first-ever IV insertion, because she had no clue how to do it. She hit every nerve in the book, but no vein!) I was THRILLED when THIS nurse suddenly told me she was at liberty to freeze me with Lidocaine (my new fave drug), before inserting the IV. Fantastic! She did that injection and seconds later, the IV needle went in, and I felt nothing whatsoever. Winning!

Then, off to a small holding room with Sam to wait for a meeting with Dr. McCready (my surgeon) and the anaesthetist. While sitting there, a man was wheeled in on a gurney and placed next to us. It was tough to see him without my prescription glasses, but I could tell he had a patch over one eye and appeared to be in pain. Sam was now sitting right beside him, so he looked up at him and said, “You look like you could use a double scotch.” The man broke into laughter. Then I said, “I could use one too, but they won’t let me.” The man chuckled again. Next, I looked across at the nurse behind the desk, (who overheard our conversation), and said, “YOU could probably use one too!” She cracked up. Yay! Sam and I had accomplished our goal, to break the ice with someone, just before surgery. That felt good.

10:15 a.m. - The anaesthetist came by to introduce himself and tell me about the drugs he’d be using to knock me out – including “the Michael Jackson drug,” – Propofil. He told me all about the tube that would be put in my throat (after I was out), to allow me to breathe, and about the gas he would use to KEEP me asleep. Then, Dr. McCready – “the Man!”, arrived to answer any questions. I had four written down (always the reporter). He did NOT appear thrilled to see my list, but was kind enough to answer them.

1.) I wanted to know if the Sentinel nodes would be frozen while I was under the general, and checked for cancer right away. (as I’d read this is sometimes done with nodes). The doc told me no. I would need to wait the full two weeks to find out results of the pathology test.

2.) I asked if he could go to the waiting room after my surgery to tell my husband how things went. He said he would.

3.) Asked about my ultrasound, which seemed to confound some of the medical people who conducted the test. At the time, I was told it was most unusual. He looked at the results and said no, the ultrasound didn’t appear unusual to him at all.

4.) I told Dr. McCready I have a low threshold for pain and would prefer to take home something stronger than Tylenol 3 (which the teaching nurse had told me I would get). He asked what I wanted. I said Percocet. He said he’d order a prescription for 30 plus some Gabapentin (used to treat nerve pain), and also ordered Colace (which helps with constipation, due to the narcotics). When I asked for Percocet, Dr. McCready looked at me and said, “This surgery is not generally associated with a lot of pain.” This comment shocked me greatly. Was he just trying to make me feel better?

Questions asked, so it was off on the gurney to surgery. Said goodbye to Sam and told him I was going to “do the song”. As they wheeled me away, I broke into, “Always look on the bright side of life!” – from Monty Python’s Life of Brian. A dear friend of ours, Patrick Spence-Thomas, sang this when he was taken away to have both his legs amputated from the knee down. The bravery it took for him to go off and face that horrific surgery, while singing such a crazy song, inspired me to sing it in his honour and memory. (he sadly passed away shortly after that procedure). One of the nurses sang along as we merrily rode to the O.R.

10:30 a.m., or so – In the O.R., a team of very lively and kind men and women surrounded me, - “my team!” They talked to me, told me exactly what they’d be doing, and then informed me they would put a mask over my face to give me oxygen. They asked me to breathe deeply, in and out and said that seconds later, they would administer the meds through the IV needle and I’d be out. That’s the last thing I remember. None of the famous, “Count back from 100” bit. I was just - out.

The next thing I recall was waking up in recovery. Not sure what time it was. I think about 1 p.m. I remember seeing a man pop his head in, and even without my glasses, realized it was Sam. I waved to him. He asked the nurse when I’d be taken to my room and they said soon. Shortly after that, I was wheeled to the elevator and up to the 18th floor to a semi-private room where my clothing and belongings had been stored in the closet.

Sam was there and sat on a chair next to me. Can’t remember anything we talked about, but only recall being in pain. Extreme, excruciating pain. (what was it again the doc said about this procedure not being associated with pain??? I must remember to set him straight on this!)

I was given Morphine through the IV. It didn’t make a dent in the pain.
About an hour or so later, I was allowed a second dose of Morphine. That took the edge off enough that I was able to sit up and immediately asked Sam to give me the makeup bag. Dumped out the contents and went to work, putting on concealer, powder, blush, lipliner, lipstick, eye shadow, mascara and eyeliner. Then, brushed my hair (which thankfully, I’d washed, conditioned, blow-dried and styled just two hours before coming to the hospital), and voila, was ready for my closeup! (although, if you click on the pic below to enlarge it, you can see the bruising and staining below my neck. I didn't have a body makeup person around to cover it up! hee hee)


My sister, Carrie came in and laughed to see makeup was the first thing on my mind! Minutes after finishing the job, the pain was back to over-the-top levels. Then, my new roommate. Francine, was brought in and I realized it was the same lovely lady I had scared with my comments about the wire procedure hours earlier in the waiting room!

She had been Dr. McCready’s next patient after me and had undergone the same lumpectomy procedure. Behind the curtain, I overheard her tell a doctor, “I wasn’t at all prepared for this extreme level of pain.” When the doctor left, I spoke to her, we pulled the curtain and had a chat about the unbelievable pain and what we were being given to counteract it. She said she was being sent home with a prescription for Tylenol 3. I told her I had asked for Percocet, and that perhaps, she might want to consider this too. (up to her). She was all alone and asked to borrow my cell phone to call her husband. Sam gave her the phone and told her to make as many calls as she liked. She called her husband and told him what room she was in so he could pick her up later.

I stayed in my room till after 6:30 p.m., (receiving two more doses of Morphine during that time). Still, the relentless pain would NOT subside in any way. It was worse than my first episiotomy, (which was done AFTER the anaesthetic had completely worn off!) My roommate’s husband came to take Francine home and it was all I could do to stop the tears from flowing when I said goodbye to her, as he took her away in a wheelchair. I knew she was in agony and told her I hoped the pain would get better for her very soon.

7:00 p.m. - My beautiful nurse, Christine, unhooked my IV, gave me two Percocets to take before leaving, I got dressed, (which was practically impossible due to the severe pain, even though I’d chosen the loosest clothes I could find). A wheelchair was brought in and Carrie helped steer me to the elevator. Sam took my belongings and went off to get the car.

I managed to maneuver myself into the front seat, still racked with pain, and feeling so nauseous and dizzy. Tried to thank Carrie and tell her how much it meant to me to have her there with me, taking care of me and “filling in” for our Mum, whom we both miss so much. Then she left to get her car and go home to her son, Lee, and we drove off into the night, heading to see our two kids, Kate and Max, waiting at home.

Most of the rest of that night is a blur. I know I carefully hugged my kids and was SO happy to see them again. I sent a few drugged-out emails and then crashed on the couch for a while, just so glad the Percocet had actually eased the insane pain and made me comfortable.

10:00 p.m. - Max helped me up to bed and with a lot of work, between the two of us, got me into a bathrobe, then under the covers, my arm and breast propped up under fluffy pillows, and fell asleep for 8 hours. The surgery was over and I had survived it.

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I'm home!

April 27/11

My sister Carrie wheeling me out the door to freedom!


After 12 hours, I'm back home. The surgery is over and apparently went very well. I now have to wait two weeks before the pathology report comes in and shows if they "got it all." I'm hoping for the best!

Sam and my sister Carrie were there for me all the way. I will write more about the experience, but for now, here are some photos from different stages of the day.

Waiting to get my IV


They gave me a snazzy hotel-style robe and flimsy green slippers!


Immediately following surgery - MAKEUP PLEASE! !


I'm on a morphine drip, but the makeup is done!


The pain that I'm feeling is pretty much every bit as bad as I anticipated. It's excruciating at the moment; however, I have Percocet and a few other drugs to help me heal quickly. I want to thank Dr. David McCready and all the Princess Margaret team members who have made me well again.

Thank you to everyone who has written, called, e-mailed, commented, and just been there for me when I needed them. I have many incredibly wonderful family members and friends. More later.

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Pain, Pain and More Pain (so says Hollye)

February 16/11

Naturally, the reporter in me has to do research into everything. Though hoping for a good result, I have the distinct feeling this could be cancer. So, reporter hat on, started Googling and reading everything I could find. Stumbled upon a blog by an American nurse named Hollye. She is still in hospital following a double mastectomy. Her blog is published on the Huffington Post site. Since one of my biggest fears is pain, I was horribly shocked to read about her own pain situation. If you dare, you can read her comments for yourself at: http://www.brooksidebuzz.com/2010/11/pain-pain-and-more-pain/
I decided to write an email to Hollye and find out more info about the drugs she WANTED and DIDN'T get and what advice she might have for me. Don't expect to hear back from her, but you never know.

At the moment, I just feel like doing nothing at all, or better still, just hiding under the covers for 24 hours in a drugged out state to shut everything out of my brain.

On the flip side of Hollye's horrendous story, there are tons of other women who have had scares which turned out to be nothing. Am hoping for that, but the one thing I continue to be confused about is the pain. Why is it there? And the pain is not just in the breast, but also in the gland area under the right arm. Never a damn dull moment, as usual.

I was later surprised, when Hollye DID respond to my questions. I believe she was writing from her hospital laptop. An amazing woman. This is some of the helpful information she told me about her own situation.
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I had spinal meningitis a couple of years ago (crazy, I know). For the (three!) spinal taps that I had, I received Dilaudid (which is 5 time's stronger than Morphine).

Morphine is the standard practice of care in the US; however, because I had had Dilaudid and knew that it worked for me, I requested it specifically for my post-surgical pain management. Well, not only did they NOT give me the requested dilaudid, but they forgot (literally forgot) to turn on ANY pain medicine.

Let me explain. After double mastectomy surgery, everyone gets a basil rate of pain medicine, which is a consistent amount of pain medication delivered through an IV. Patients also get a PCA (patient controlled analgesia) for what is called "break through pain" (pain that overrides the basil rate). Break through pain can happen when patients start moving after surgery, for example. Does this make sense?

As I mentioned, the standard practice of care in the US is morphine for both the basil rate as well as the break through pain. I knew that was not enough for me and, being a nurse, advocated for a different medication (Dilaudid).

After surgery, I was sent home and instructed to take Percocet by mouth. This drug is a combination of acetaminophen and oxycodone. This also did not work for me. So, after my palliative care consult, I adjusted my home medication to Dilaudid by mouth.

Many people will say that Dilaudid is "addictive". It can be; however, I had absolutely no problem stopping the medication. There were no issues because I was not in any way tolerant or addicted to the medicine.

I'm not suggesting that you go for Dilaudid, by the way....rather, my suggestion to you would be to have a very long talk with your team to figure out what, based on your history and current plan of care is best for you.

I would also encourage you to include Palliative Care as part of the team. There is a great misconception about Palliative Care, i.e., that it is for end-of-life care. Well, that is one aspect, but the primary role is to specialize in pain and symptom management. Having the Palliative Care team as part of your health care is the best way, in my opinion, to ensure that pain and any coinciding symptoms (e.g., constipation) is managed.

My Oncologist works very closely with my Palliative Care doctor.

I hope that this is helpful to you, Elaine. Please let me express, again, my condolences that you have to endure the F-Bomb that is breast cancer.

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